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Old 04-21-2010, 09:32 PM
catie catie is offline
Junior Member
 
Join Date: Feb 2010
Posts: 99
10 yr Member
catie catie is offline
Junior Member
 
Join Date: Feb 2010
Posts: 99
10 yr Member
Default Has anyone been to Mayo?

Hi!
My neurologist has suggested going to Mayo for an evaluation. Has anyone been to any of their facilities? If so, what was your experience?

A little background on my situation. I'm not diagnosed w/MG, but have been on Mestinon for about 2 months. It has mildly helped my double vision, although symptoms of arm/leg weakness have resurfaced. I had testing a number of years ago when symptoms started. At that time test results were all negative, although clinical symptoms pointed to MG. Neuro is reluctant to proceed further with treatment options until a definitive diagnosis is established.

Being seen by an MG specialist would require traveling and the neuro felt Mayo was the top place to go. Any thoughts?

Cate
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