Hi abrown,
Mostly, I want you to know that I read your post twice and you were heard...I know it helps so much to know that your pain, physical and emotional, have been acknowledged by people who understand..

You are at a crossroads with your SCS and are getting several different messages from different folks, which is confusing..
I hope you are able to take in the info objectively, and even record it on paper, so that you can review it, analyze it and mull it over...
In the meantime keep ommunicating and finding our different resources so you can make an informed decision. Maybe the RSDSA website can help you locate a good doc in your area, or one of the posters may have a suggestion.

Last year, I was having some MS symptoms and my WC doc wanted me to have a BRAIN CT scan to rule it out....needless to say WC would have not approved this test, and they would have let us know weeks later....so she made some calls to my regular insurance doctor, they called my own insurance co. and the CT scan was approved....

I don't have an SCS so I'm sorry I can's share technical experience.
I hope you are able to gather your strength (perhaps after shedding some tears to help you diffuse your emotions ) to be able to move forward and figure out what YOU want to do..
I am so sorry you are having a very hard time...things will change... xoxoxox
Sending many hugs,
hope4thebest