You will find many folks here who care and can understand what you are dealing with right now!
Ask if you need help finding your way around......
The Spinal Forum may also be a good place to check
Also the SCS forum (i think you said you've already found it) will give some info......
The frustrating thing you are facing (besides the horrible pain!) is that your 2 different Drs are telling you 2 different things.
I'm so sorry you are dealing with this.

The SCS is a huge decision to make....but the good part about that is you can do the trial first to see if it is something you'd want to commit to.

I wonder why your Dr's aren't agreeing on this? Is one of the doc mentioning the possibility of RSD spreading?

You'll find many caring friends here, Val!
Help is on the way!

Rae