Annie,
Thanks so much for your reply. Yes, I very much want a patient's perspective. I've had my own horrid experiences with "experts" and realize how difficult it is to get an unbiased evaluation after that. And I do have reservations that Mayo could be a repeat nightmare.

I've had most of the diagnostic tests a number of years ago, but the neuro who follows me now feels it would be beneficial to repeat them. They are looking at the Mayo in Arizona.

So what does one do? The MG expert in my area is not an option, so if I'm evaluated again I do need to travel. I will check out the MDA website. That may prove to be helpful.

Cate