Hi I am so sorry for your pain and all you are facing. I have a few thoughts. Are you or have you see a neurologist? Before you got the scs did you have mri of the brain and spine? I am sorry if you stated this somewhere before. When they were ruling out other conditions MS was one of them and why the mris but now I know the scs you can't have one. I still would find a good neurologist. As for the scs I had been told placement of the battery is important for many people in terms of pain. This is what I heard as i don't have one. Could you put a call into the person who did the repair?Is there anyone in real time you can reach out for support. Sometimes I feel like I can't get up the umph to see another doctor and that is when I need the help of others to push me. Even just for moral support. I am sorry I don't have more to suggest. If you want an email buddy I am here. Please hang in there and for myself when I feel just so overwhelmed with pain etc I try to take 1 hour at a time.