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Originally Posted by daniella
Hi I am so sorry for your pain and all you are facing. I have a few thoughts. Are you or have you see a neurologist? Before you got the scs did you have mri of the brain and spine? I am sorry if you stated this somewhere before. When they were ruling out other conditions MS was one of them and why the mris but now I know the scs you can't have one. I still would find a good neurologist. As for the scs I had been told placement of the battery is important for many people in terms of pain. This is what I heard as i don't have one. Could you put a call into the person who did the repair?Is there anyone in real time you can reach out for support. Sometimes I feel like I can't get up the umph to see another doctor and that is when I need the help of others to push me. Even just for moral support. I am sorry I don't have more to suggest. If you want an email buddy I am here. Please hang in there and for myself when I feel just so overwhelmed with pain etc I try to take 1 hour at a time.
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Hi I do not see a nuero and never had a MRI of the brain and spine. Nothings been ruled out. I have been trying to make a list of all the symptoms no matter how small and then take to my pain doc. He is the only one who i feel really takes time and listens. As I was talking to a friend who has ms she said I had a lot of the same symptons she had. I looked up a detailed list of symptoms and scary enough I have over 50% of what I read. I just want some doctor to help me rationalize the symptons and maybe figure this out. Thanks again.