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Old 04-22-2010, 11:02 AM
Trinkeet Trinkeet is offline
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Join Date: Apr 2010
Posts: 1
10 yr Member
Trinkeet Trinkeet is offline
New Member
 
Join Date: Apr 2010
Posts: 1
10 yr Member
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Quote:
Originally Posted by RedPenguins View Post


So, I've been dx for exactly 7.5 weeks...out of the blue.

Of course, I've been reading and reading all that I can on MS, etc. I'm always stumped and feel sad when I hear of people stuck in 'limboland' and undiagnosed and waiting. Of course, I went to doctor thinking I had a pinched nerve. Two hours later he called to say I had MS! But I digress.

So, we all talk about our lesions (or lack thereof) on the MRIs...

I've never heard anyone report about finding of DAWSONS FINGERS showing up on their MRI. My MRI had a VERY clear finding of this - and I think when I read the MRI report (3 days after I was dx - and after I had second opinion) - I read up on this dawsons fingers thing - and it is hallmark of MS.

So as I've sat here shaking my head for the last 7.5 weeks thinking about how unreal this is - and through two courses of IVSM now - still in shock - "this can't be happening" - I wonder and I don't get it....and I think - but don't I need all these other tests - spinal tap (and some others mentioned here)....I remind myself, um, no, my MRI was pretty dang clear. What's that all about?! I got a 100% MS dx within 2 hrs of my MRI - which was within 4 hrs of meeting the neuro - whom I went to see b/c I thought I had a pinched nerve in my face! This is my first exacerbation - going on two months now - wish it would end

Sometimes I think about calling my neuro and saying, "you know, what if you're wrong? Don't you need to test me and put me thru the ringer?!" - not that I want the pain of a spinal tap - I hear it's awful.....but what if it came back negative?! LOL - doubtful - but I'm hearing stranger things, right? I don't think this is denial on my part - though, I could use a dose of denial right now. Sigh.

Just wondering if anyone else has had this found on their MRI - and if so, did it clinch their dx?

~Keri


Hi Keri

I too was tested 5 years ago. I was having numbness in the left side of my face, neck and body pain, horrific vision and so on. I had MRI's done with and with out contrast dye of the C spine, T spine and Brain. They found white oval Dawson Fingers lesions on the front part of the brain. The doctors have not positively diagnosed me with MS. Five years have gone by and now I feel the weakness in my arms, legs are sluggish and torso is very stiff and achy. I will be having new MRI's performed this upcoming week. Blood works came back negative for Lyme and Lupus.
As I continue to do my own research. I am finding more issues associated with Dawson Finger lesions. My biggest argument is...If its not MS, then how about finding out what it really is.

I am not up for the spine puncture......My doc said its not necessary. He also diagnosed me with Fybromyalgia. Another falsely diagnosed condition.

I think LIMBO is getting over populated.

Good Luck!
Terry
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