Quote:
Originally Posted by BeccaP
I've never been stoned, but from descriptions I've heard, it seems similar to the brain fog issue, for me the fog is worse when I feel the "dizziness" or the "my head is floating around a couple of feet above my body" feeling. So totally spacey, but also hypersentive to sound/stimuli. The fogginess seems to be gradually improving over time but the actual dizziness (I am very easily unbalanced and feel like I'm moving) doesn't seem to be lessening.
pbob-
How long since your injury? It really does stink to not be able to exercise! Your "dizzy issues" sound very similar to mine. I am also extremely sensitive to sound. I have an adorable, but very loud, 4 year old and feel sorry that I am constantly shushing him. Sitting next to my daughter when she clinks her flatware on her plate while eating is really unpleasant, hurts my ears, like anything else with any volume, but especially the sharper noises as you noted. Sadly, my husband's voice at normal volume is just at the right level to really bother me, if he needs to talk for long I put in earplugs (thankfully, it doesn't offend him), which I use liberally. I do the stuff I have to, and then spend the rest of the time in my room with the door closed. My eyes still do weird stuff (blur, harder to track moving items and follow the flow of text) but at least I can finally handle reading more complex structures! It was good thing we have lots of kid lit with big print and simple sentences around the house, it saved my sanity for the first few months of my self imposed isolation. In general, I tend to avoid being around people more than I have to, it is just too hard. I hope that will change, I isolate myself because I need to, but I don't like being isolated. Total catch-22. Oh well!
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It's been about a year and a half since my injury, the sound sensitivity hasn't improved. I think the fog/lightheadedness was worst in the first several months but any improvement was short lived. Dizzyness has got worse if anything, but it's really hard to tell. I have kept a log, although there are gaps because writing about this stuff isn't exactly a great way to stay positive, but it's essential.
re sound sensitivity, do you have any tinnitus also? My ears have always felt different, just not right. I can't put it into words. Anyway, I noted some ringing when all this first started but it wasn't prominent enough for me to be sure and I think I just forgot about it. From then I think I may have noticed it/thought about it a few more times but I can't be sure, and recently I've noticed it again but this time it's stuck. It's mild, so I'm not sure if it's always been there and I'm just more concerned about it now or if it has actually developed/got worse. Oh and I'm considering getting some fitted ear plus to wear permanently, sharp sounds can cause some horrible pain.
One thing that did improve was fatigue. I was exhausted for months and it subsided at some point. In my log I have notes about having lots of dreams and then waking up exhausted in the morning, and basically always feeling tired.
So on the whole my recovery has not been too hopeful. I have never received any help for this and I will visit the doc at some point, I doubt I can get any help. Neurofeedback may be something I try if and when I can afford it. Light/sound sensitivity is on the list of things it can improve, apparently.