I posted here a few years ago when I had other symptoms and now I have new symptoms and my neurologist is finally thinking that something strange might be going on with my body.

2005 was when things started off. Numerous times in one year I went to the outpatient clinic due to sudden paralysis, chronic pain stemming from the jaw/mouth to the inner ear on one side of my face. I wasn't able to swallow or speak- the pain was that severe. Got a pain shot and some steroids to correct it, then they sent me home with no explanations or referals. Then the tremors, tingling and numbness started in my fingers/right hand. Had an EEG test- came back neg. Three doctors all told me I was crazy and that the symptoms were ALL IN MY HEAD! I was very irritated and humiliated. One doctor even told me I was psychotic (I have BPD)- which was more than I could take by this point. Throughout this journey I developed migraines. No one would refer me to a neurologist to treat them. I just had to endure them with over the counter meds. Finally I got a referal by one of the rude MD's, who told me that 'I was crazy'.

I've been treated by the neuro for 2 years. Had a false MRI two years ago. The Migraines have worsened and last November dizziness and nausea started up with/without the migraines. Then two months ago the dizziness/nausea became so bad I have been immoble. Saw the neuros' PA instead for a migraine with the dizziness. She dx'd me with vertigo. Had the Eply manuver done to treat the vertigo. It didn't work. Instead, it made things much worse.

I have hearing loss and wear hearing aides in both ears. Over the last twenty years I have had a steady hearing loss until this past year. I lost 10 decibels of hearing in both ears last year. It alarmed my audiologist and she was dumbfounded by the loss and couldn't figure out why it was significant compared to past years. Since I was tested in January me and my family can tell that I have lost even more hearing due to how annoying I am at home and on the phones.

The PA is ordering up an ENG test and another MRI. Should I be concerned about having these tests done? I have no idea what to expect or what they might find. Is this what any of you expereinced before you were dx'd? Am I on the wrong forum? I am very lost and confused.

Any direction or support would be appreciated.

Coffeegirl