Kathie,
It is so interesting that you mentioned the Mestinon did not work the first time but did the second. I had the exact same thing happen. I got nothing from Mestinon the first time but after being on Pred for a few months and now cellcept it works well. I can tell when I am due for my next dose. Did your Dr. mention if he thinks it will continue to work that well once you are off the pred?
Kendra