Bill, I am so sorry you have been through so much. My heart goes out to you. I've had those brushes with death too and they are hard to deal with. That was a nice, honest reply you gave about Mayo. I hope things get better for you.

Cate, What does one do? Proceed with caution. Sometimes there are experts at Universities or places you may not expect. Call around and see who is in your area. If you can't get anyone, you may have to roll the dice and go to Mayo. You deserve to have the best care possible.

Annie