Quote:
Originally Posted by ArmyMahmaa
Good morning.
I am looking for information from anyone with MS that has taken or is taking Tysabri.
I am looking to find out your thoughts and/or experiences with this medication.
I have been on Rebif for 3 years now and still average a relapse 2 to 3 times a year. My doc and I are looking at doing the Tysabri. Before I agree I just wanted to find out as much as I could.
I am aware of the episodes from 2 years ago and understand the happenings that caused them.
I just need information from others about Tysabri.
Before I did 5 infusions of Novantrone, I did not do research or ask others about it. I wish I had. My heart didn't take to kindly to it. I have a low ejection fraction, 3 valves regurgitate, and I have a murmur. All which was not there prior to treatment because of the echo done before.
Any information and advice will be so appreciated.
Thanks
Sheila
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Hi Sheila..
I have had 5 infusions, thus number 6 the 9th of Febuary,,, do I feel better ?,putting it bluntly no,, but don't let this discourage you from doing it,,
I also was on ReBif, till the insurance gurus jacked the copay up to outrageous numbers..
good luck in any of all decision making..
Peg