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Old 04-26-2010, 07:11 PM
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darlindeb25 darlindeb25 is offline
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
Posts: 744
15 yr Member
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Quite honestly, looking at all my diagnosed celiac friends and family, I can safely say, being double DQ1 is worse. None of them are sensitive like me, all eat "gluten free" labeled foods, plus other grains, I can't, not without a massive gluten reaction.

Do you mean DQ1, subtype 5?
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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