Bill, Thanks for your response. It really helps to hear from people who have been there for an evaluation. Good or bad, I want to hear it. And I'm so glad that you are doing well now.

Annie, yes I agree with you about proceeding w/caution. I have always been a self advocate and that has occasionally resulted in a tense relationship with a few of the specialists I've seen. I now have a PCP who is supportive and will coordinate the referrals and personally follow up with the specialists I see. I am planning on being evaluated at a smaller facility and am hopeful that I get the answers I need.
Cate