View Single Post
Old 04-28-2010, 01:18 PM
Conductor71's Avatar
Conductor71 Conductor71 is offline
Senior Member
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
10 yr Member
Conductor71 Conductor71 is offline
Senior Member
Conductor71's Avatar
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
10 yr Member
Default

Quote:
Originally Posted by Debi Brooks View Post
a couple of thoughts...we are in fact trying not to use phrasing that is too cumbersome and in general, inclusion / exclusion criteria will come into play at times that might make the general use of "parkinsonism" too broad.

We sense that from the prospective of the PD patient the concept of "healthy volunteer" does connote some value judgment--not to mention, from the perspective of a "control/healthy volunteer" patient...one could have arthritis and still be a considered an appropriate volunteer for a given study but they might disqualify themselves when they see the use of "healthy"...thinking their arthritis makes them "unhealthy"

We anticipate that it is tough to come up with universal "labels" but for the biomarker study, calling out the diagnosis might be too specific.

What about from the perspective of the control...what do you think catches their attention and is appropriately respectful and inclusive?

More thoughts?
Debi,

I agree with you on the use of "healthy"- this can be confusing.

I think that PD-Patient Participant and Non-PD has the most clarity and neutrality.

"PD Community Volunteer" sounds nicer but I think the "community" may cause some confusion too.

-Laura
Conductor71 is offline   Reply With QuoteReply With Quote