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I have asked them to stop all the silly test, and guesses, and simply allow me the time and the energy to heal. It seems I would get a day of bowel rest, and then...someone else would want me to swallow barrium, or radioactive eggs, or a scope, and it set me back to the state of unhappy tummy.
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This sounds perfectly reasonable to me--allowing you time and energy to heal. I hope you can manage to persuade them that you might just know a thing or two about what is best for you.
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One nurse actually said "wouldnt it be good news to have Porphyria and not MS?!"
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Words fail me here.
Hang in there--better days are ahead, let's hope. I agree that it's good they admit they're guessing. Know-it-all medical professionals would worry me far more than ones who honestly say they don't know.