Hey Allison,

Thank you so much for updating us on Danny's progress. I too became much worse after my thymectomy in 02. Not only my usual symptoms, but I developed new ones as well. My insurance wouldn't cover anymore plex and I opted to take only Mestinon and still do. The first year was pretty rough, but eventully little by little the sypmtoms lessened and I became stronger. It did take about 4 years to see the full benefits of the surgery and I'm very glad I had it done. I had one crises which put me in the ICU for 5 days, but I totally contribute it to the heat.

I wish Danny all the best and I'm sure he will come along at his own pace as well. I'm so sorry he is not doing well now. Sometimes the plex can take awhile to really kick in and I hope that's the case for him. Please keep us updated when you can and take good care of yourself too. I'll be keeping good thoughts.

Hugs,
Pat