Quote:
Originally Posted by 2claws
Hi Im quite new here but have found everyone here to be so helpful. I have had CRPS for 2 1/2 years now. I was holding a horse whilst he was having dental treatment and I ended up with a damaged brachial plexus which led to CRPS, which has since spread throughout my body.
I also only have one arm - my lower right arm is missing (from birth). I wear a prosthetic limb and it operates from a band (on hook) and wire mechanism that attaches to a strap that goes round my left shoulder. Basically as I push limb forward it braces against my opposite shoulder and opens, then as I relax the bands close the hook. Having CRPS has made this more challenging to say the least.
I was just wandering if there were any other CRPS sufferers out there with missing limbs. When I read about CRPS it freaks me out to read about amputations.......
I try to keep positive, though some days it is so hard, sometimes too hard. My horse riding (dressage) is what keeps me going - it equates to 3 dimensional physiotherapy but far more fun  . I still have my dream of representing NZL at the London Paralympics 2012 in the Para Equestrian. I guess this dream is what keeps me going and of course the love and support from my son (8) and friends.  |
My understanding is many years ago it may have been a common practice for those with RSD to have their injured limbs amputated because of the severity of RSD in the limb. That practice has gone on the way side because it can spread the disease more rapidly not to mention the possibility of phantom pain on top of it all. However, I have read posts of a few people with RSD, over the past 5 or so, who stated their doctor suggested they have their infected limb amputated. These posters learned quickly to find new doctors in a hurry.