Just last week I got a call from my Neuro's. nurse. They had received my letter which I had sent informing them of my last flop (which was 7 months ago & he had not bothered to get the records of) I fully explained how my wonderful day had gone, although very little was on the hospital records. When someone has a seizure for a day+, what can they expect us to remember after they shoot the valium in? I was letting them know I added 100 mg of my drug every 3 days because of my auras also. My neuro apparently can't keep the level under control, so I am helping him out.
Since the nurse said there was no problem w/ the added dose I assume it was low, but in the normal range.
So now he has the paper in the file & hopefully he bothers to look @ it & I remember to mention it. It will be an interesting appt. I'm sure. I'm contemplating taking a copy of "Dealing w/ Doctors" & posting it in the room.