Ada

you have no idea how I empathise about much of what you said. I can't handle multiple diagnoses, understand my body or anything really.

Firstly - I don't really care what name they give what's wrong with me - I just want the pain to go away and to be able to live my life, without pain and without disability. I just want to be normal.(well. my own unique self - but normal physically, I want to be able to do what my friends do and not pay for it for weeks afterwards). Take tonight - I have a friend from Oz sleeping on my bedroom floor - she has been asleep 2 hours and I am nowhere near sleep and the way tonight is going I will get none - I'm just fed up and want this over with - WHY can't I be normal? (My OZ friend has mild RSD and she is dead to the world and seeing her brings the reality of RSD to me).

Trying to understand what my body is doing to me is impossible. I just can't understand it - I fear I have lost the words to describe what it is or what I am anymore other than a giant ball of pain. I don't know what is which and it drives me insane.

I'm just being miserable tonight - I fear I have really done my left leg some damage - I think I've subluxed the hip and knee - it went into spasm, got caught through my bed sides and made some "pops" and "cracks" noises... and now hurts pretty badly - so now my feet are on fire, my hip is on fire and I can't move it - everything is fire (but.. for the first ngiht ever in Bath I am without covers! and this is cheaper than central heating - so being a poor student I will now be able to afford to eat - JOKE).

Oh well.. I just wish the dr's would realise is that I don't care what they call it. How many different diseases they decide it is. I just want treatment and to get better.

Susan --> I really think you should see your PCP before you come off everything - it sounds like you need treatment - can't remeber if you have made an appt with a PM dr. Have you considered any holistic treatments?

Oh well - we will just have to have a quiet, virtual, girly night in, with lots of heat packs, chocolate and cocoa............(and movies, facials, gossip and girly magazines).

Lots of Love

Rosie xxxxxx