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Old 05-01-2010, 10:33 PM
hope4thebest hope4thebest is offline
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Join Date: Jan 2009
Posts: 305
15 yr Member
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
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Andrea,
I hope this information helps!

1 How long did it take to get a dx..how many docs
Hard to say how long the RSD was brewing..I'll say 6 months..2 docs

2. Have you ever been denied treatment?
A few tests, such as a foot sonogram, a special test for
neurofeedback, more warm water aqua therapy and physcial therapy,
a special compounded cream that apparently was too expensive

3. Have you been told it's in your head, by docs or friends, etc.
No, everyone at least acknowledges the reality of the pain..

4. Been called a drug seeker, or addict?
On the contrary, I have declined a lot of the suggested meds, so I
'grin and bear it' alot..

5. Not been believed in the E.R.
I was in the E.R. about three weeks ago because of terrible lower back
and hip pain and I told them I was concerned it might be the RSD
spreading..I have lower limb RSD ..they were very understanding and
did a CT scan..this acute episode took about 5 days to resolve...

6. Felt alone at least once since getting DX'd
Oh yes, yes, yes!! I used to hike and and was
physically active..this turned my world upside down..Because the
pain is invisible,(except for the swelling and redness) I feel that
others can't possibly comprehend what it's like..

I hope this helps with your assignment. It's great that you are educating so many by choosing RSD as your focus!

It can help others get an early diagnosis!
Thanks for this!!!
Hope4thebest xoxo
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