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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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What I do when I have a lot of questions about what is going on with my body, I write it down, and ask my doctors about it, and get detailed information from them.
Take some one with you, so you have another person there to help ask questions, and to help remember the answers.
It seems to take forever to figure it all out, but it sounds like your doctor is on the ball, and it's so important to get accurate info from your doctor.
Also, another way to get some good info, is to visit as many internet sights as possible relating to Myasthenia Gravis.
What I've done is printed out info, and then had my doctor read it, and see what he thought about it.
There are some great sights out there that can further help you. Please please check them out.
When I was first diagnosed,I was told to educate myself in every aspect of this disease, and really it has helped so much.
And don't be shy about asking what other MG'ers feel when they do certain activities, and such.
You can write me any time, and I'd be more than happy to help in any way I can.
I know you're in a whirlwind right now, and I know how crazy it can feel, so you hang in there. 
Love Lizzie
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