Hi Kate,

I was recently diagnosed with crps 1 and have been searching for a doctor experienced with rsd. It is so frustrating. The doctor I have now looks at me like I have 10 heads when I tell him about my pain. Even though he has experience with rsd. I found a website rsd.org the phone #877-882-7737. The person I spoke to is James Broatch. I told him all my problems and he was so helpful and understanding. I gave him the area that I live and he sent me a list of doctors who work with rsd in my area. I also found a support group on the site. You just put in your state and town and it will show all the support groups in your area. I got some referrals for doctors from the woman who runs the group near my house.
Good luck. I am sorry for your troubles.
Eileen