I've come to the conclusion that these steroids are not doing anything for me other than giving me insomnia.

Symptoms seem a little worse (the numbness has gone higher just in the last few hours. Up to just below the sternum now...gone steadily higher over the course of today) The numbness is pretty bad in my feet, but if I'm not wearing socks, isnt as bad as it was yesterday.

Calling the neuro tomorrow, and begging for IVSM or anything else he'd give me to try to stop this thing. I dont think I'm sleeping much tonight, even tho I'm exhausted.

I was just using my mom's TENS unit. I was experiencing what I think was THE HUG from HELL! I got desperate and decided to experiment with the TENS to see if it would help.

I put the electrodes from the TENS on the areas where it was the worst and used it for about a half hour. It seemed to help, but now that I've taken it off, the horrible sensation is coming back.

To make everything that much more annoying, the rest of our house guests arrived tonight. I am not happy. They're going to be here for quite awhile, and I feel claustrophobic already. Too many people. (3) One is a 12yr old, and while she is related to me, I'm not real comfortable around children, and right now, not feeling good. It just feels like it's going to be causing me a lot of serious stress right now.

I feel like crap, and now I feel like I have no privacy whatsoever and I have to figure out a way to get my butt to an outpatient infusion center for some juicy 'roids. Oh, and also take care of my mom and her now healing broken shoulder. (not sure the house guests are going to help me with that)

Those house guests, from what I've been told, could be with us a few weeks to several months. This is not going to end well. I can tell. I may have to use my MS as an excuse to pressure them to find their own living arrangements sooner. (hey, at least the MS can come in handy sometimes)

My mom doesnt react well to change and stress, and I can already tell she's having problems. She freaked out that the youngest house guest is sleeping on our glass enclosed deck. (that's gonna be warm in the morning...it's east facing...at least it has blinds and an air conditioner/heating unit on it) She decided to try to sleep in bed with my dad tonight, rather than sleeping on her recliner where she's been more comfortable. Tonight was the first night that I havent had to "tuck" her into her chair. Hope she gets a better night's sleep than I'm going to get.

I'm going to go take my first shower in four days (better take a phone with me just in case. Not totally steady tonight) I'm tired, but I just dont think I'll get any real sleep tonight. Last night it was like sleeping on rocks. Plus, this HUG thing is seriously putting a damper on things like breathing.

Gonna go see if a cool shower helps things. I think I'm going to have my dad put a grab bar in my bathroom this week. (it'd help my mom if she ever uses my potty or has to use my shower. My bathroom is the only one that doesnt have any grab bars)

edited to add:

just in case anyone was worried about me taking a shower at 3am when I'm unsteady and everyone in the house was asleep. I made it in there and out without falling or killing myself. (I was really careful) Only reason I feel any better is that now I'm clean with clean hair. (and cooler too. Might let my hair air dry) I'm still horribly numb and feel like crap, but at least I'm cleaner now...that feels good at least.