Thought I would point out that you might be well served to see a Movement Disorders Specialist (a self-declared specialty within Neurology that typically means that the doctor did a Movement Disorders fellowship). Folks who get to a MDS find that some of these nuances in diagnosis and treatment are improved (although even top specialists can be baffled -- particularly at early stages of disease). And, we know that overall treatment in the course of the disease is improved with MDS.

There are also some great PD specialists at some of the VA treatment centers called PADRECC's. You can get more information here:
http://www.parkinsons.va.gov/

Good luck--I know these experiences trying to get to answer can be unsettling and scary.

Debi