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Old 05-03-2010, 04:16 PM
shayna shayna is offline
Junior Member
 
Join Date: Jun 2009
Location: Nevada
Posts: 80
15 yr Member
shayna shayna is offline
Junior Member
 
Join Date: Jun 2009
Location: Nevada
Posts: 80
15 yr Member
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I had my infusion last Friday...# 32 It went well and I had my "normal" side-effects: headache, aches and pains, nausea, abdominal pain, dizziness, sleepiness, loss of appetite and chills. So, I spent a few days on the couch sleeping I'm doing much better today...just a bit dizzy.

The oncologist who overlooks my infusions almost had a heart attack when the nurse told him how long I have taken diflucan for that fungal rash. He had not planned on talking to me but as soon as the nurse mentioned it he rushed over to me and asked several times if my neuro was aware of the fungal rash and the length of time I had been on diflucan. I reassured him that she has known about the rash for the past 2 months and when I saw her 2 weeks ago she said to go ahead with my infusion. The last time I had an infusion they forgot to ask me any questions and the dr wasn't there.

They didn't draw blood again. I can't remember the last time they did But, I had the info from the blood draw my PCP did and I gave that to the infusion dr when he was so upset about the diflucan. They made a copy of it and placed it in my file.

I'm going to call my neuro and see if I can get into the studies that are being done to test for those patients prone to PML.

There was another M.S. patient at the infusion center and she told me that she had 40+ infusions...she stopped counting after #40 She loves TY and has no intention of stopping. She's still in a wheel chair but her QOL is so much better and she hasn't had an exacerbation since she began Ty.

take care everyone,
Shayna
shayna is offline  
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