Hi Oriana,

Sleep is a common time for seizures to hit me, especially in times of high stress.

Personally, I rarely wake immediately following seizures. The few times that I have woken following the tonic clonic, my only way of knowing is when someone tells me. I may feel really tired and weak, but I haven't ever been aware of any jerking motions or frothing at the mouth.

It is possible that you are experiencing non-epileptic seizures due to an unknown source. My epileptologist has told me that many people, both with and without epilepsy, suffer from events which they perceive to be seizures. Tests show no abnormal brain activity during these events though. They are taken seriously by professionals, and not simply thrown to the side.

I hope that your doctor sends you to an epileptologist, to be sure that nothing is being missed in testing and Q's regarding what you personally experience. There are several different Epilepsy Resource Centers in the states. I'm in Minnesota, and many come to Mayo Clinic from all over the world. In California, Stanford University is excellent. San Francisco State is pretty good, as is UCLA. I want to say there's a link that shows Epilepsy Resource Centers, but I'm unsure of how to do computer stuff. (I'm back in 80's on that level, sorry!)

Very best wishes to you!
Shez