Welcome! I'm fairly new to the group and new to MG so can't offer a lot in terms of experience. There are lots of very knowledgeable, supportive people here, so hopefully others will respond.

My neuro also told me that the antibody tests are only positive in about 50% of people with ocular myasthenia. Mine were negative. In fact, all my tests were negative years ago, but I'm currently in the process of being reevaluated. Did you have other tests that were positive for myasthenia?

I completely understand your frustration with the double vision. It sounds like for some people mestinon can improve or completely alleviate the double vision, but for many others it is the first option before other drugs are added. I'm at that point as well. Steroids have been discussed but neuro would like more testing to confirm diagnosis before adding these.

I hope you have a neuro ophth follow up appt. scheduled soon and can get some answers and some relief from the diplopia.

Hugs,
Cate