Ally, I think you have to keep these doctors holding to both their word and their findings. They can't just say this and then say that. So clarifying it all - in black and white - really helps you.

If I were rich, I'd start a center where "the undiagnosed" (sounds like a horror movie in the making) would get diagnosed. They would then be referred on to the appropriate specialists. No on-going care would be done there. Doctors would work in TEAMS and not even see a patient until they came up with a testing plan. Oy. The way they do things now is nonsensical, expensive and dangerous.

If a person doesn't go through what we - and others like Rach - have gone through, it's hard for them to even relate. It's such a betrayal of trust and so traumatic. All I ever wanted was to know what was going on and go back to work. As if.

And this is what I want to do to some doctors, to see if they are "real" ones . . .

You should be very proud of yourself. You've been through all this and are still fighting the good fight for yourself. Don't stop! You deserve the best of care, as we all do.

Annie