This just in! Email response from BNAC on cost of testing:

"Dear Cindy:

The ccsvi testing program is $4500. Please note that while reports and images are given, no diagnoses or treatment recommendations can be provided. I am away from the office until next week so am not able to send you more information. I have copied my colleague as she can send you the attachment describing the program.

Regards,
Cheryl"


Less than an hour later, from the esteemed colleague:

"Cindy,
Here is a little more about the program. If you have any questions please do not hesitate to ask.

The following is included:

MRI of the brain and neck: This MRI is designed to collected special pictures of your brain and neck. The MRI will last 60-90 minutes.

Doppler ultrasound: A non-invasive test that uses reflected sound waves to evaluate blood as it flows through a blood vessel. It helps doctors evaluate blood flow through the major arteries and veins of the arms, legs, neck and more recently with the new instruments also the flow trough the brain. It can show blocked, reduced or reversed blood flow through the major vessels of the neck and head. This exam will last about 45 minutes.

Clinical visit with a neurologist: You will have a physical examination which will include blood pressure, pulse, and functioning. You will be asked questions regarding your medical history as well as what medication you currently take and have taken in the past. There will also be questions about your MS diagnosis, symptoms, and relapse issues. The tests will evaluate disability associated with MS, leg, arm and cognitive function, and fatigue. The visit will last approximately 60 minutes.

Neuropsychological evaluation: You will complete a group of tests which are designed to assess memory, cognitive functioning, hearing, verbal learning, motor function and mood. This testing takes about 2 hours.

Blood sample: You will be asked to contribute 2 tablespoons of blood for evaluation of specific genetic factors related to higher MS disease susceptibility and severity.

This study has no funding assistance. At this time, there isn’t any health insurance reimbursement for any testing component. You have agreed to pay $4500.00 for the testing and reports.

Thanks,

Christina Brooks
Administrative/Project Coordinator"