Quote:
Originally Posted by MelodyL
Hi all.
As you know I go to the Neuropathy support groups every month. The man who runs the meeting, my friend Steven (who himself has CIDP), just phoned me and asked me if I knew anyone (a female), with CIDP.
It seems that one of the IVIG magazines (perhaps IG LIVING??), needs to interview a female with CIDP who would be willing to participate in an interview ( I don't know any details), and share how CIDP affects their traveling.
I told Steven I would post this question on this forum. If any women with CIDP would be interested in being interviewed about their travel experiences, can you please reply here, and I'll let Steven know. I will then private message you his contact information. I think he just needs one person, but I'm not sure. You can correspond with him via email or phone (whatever is easiest for you). He will then give you all the information about being interviewed.
I've known Steven for many years, and we meet once a month at the CBS building.
Maybe one of you can help other people?
Thanks much
melody
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There is NO ONE with CIDP, who frequents these forums?? I've got to go some place and post elsewhere. If anyone knows anyone, let me know okay?
And I hope it was okay to post the question. I tried doing this on another message board at HealthBoards (A CIDP MESSAGE BOARD, no less). and I got banned the next day for "taking a survey".
I didn't take any survey. Good Lord, you tried to do something to help someone and they ban you.
lol