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Old 05-07-2010, 08:25 PM
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,432
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,432
15 yr Member
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Here is another site on HNPP which may be of help to you. Or perhaps you have read it before as well as the http://www.hnpp.org site.

http://en.wikipedia.org/wiki/Heredit...pressure_palsy

It certainly would be nice if you can find out exactly what you have. Thank you.


Quote:
Originally Posted by ouchmyfoot23 View Post
Thanks for your input. I thought it was HNPP for a while, but I'm not bouncing back, seeing as how I have CTS in both arms (didn't know it), arched feet, slow muscle wasting on both sides (the left looked like it was going faster but it could be my imagination because I am left-handed).

Doc assumes the carpal tunnel is bilateral because of the muscle wasting. On my left arm, I had:
"Left median sensory conduction was slowed (46.4 m/s) with borderline SNAP amplitude... Left median distal latency was prolonged (4.0 ms) with reduced CMAP amplitude and borderline conduction velocity... Left ulnar motor conduction velocities were slowed across the elbow (17.7 m/s) with normal distal latency and reduced CMAP amplitude."'

That was back in early February and the muscle wasting has gotten worse since then. All this happened without injury.

So indeed, it may just be HNPP or something autoimmune with something exacerbating the symptoms.

My neurologist didn't advise physical therapy on the drop foot, he just ordered an assessment of my arm. He even told me PT would be pointless.

When I speak of these "body attacks", they come and go and I seem to bounce back within two days. Who knows, maybe they are severe panic attacks manifesting themselves physically, because I have a history of them for over 10 years.

Again, thanks for letting me vent on your board and for your suggestions. Perhaps I'll read more about EMG/NCV results in regard to HNPP. I am having trouble finding any new information about HNPP because I've been searching the internet for months about it.
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