Hi Laudette
What you have described sounds like what I had for most of my early childhood until I finally discovered some medication to help. But before anything I would definitely get a second opinion. Most likely a biopsy would be necessary and several other tests. It took nearly 14 years before a good doctor referred me to a neurologist and able to determine that indeed I had a neuromuscular disease. Mestinon is the medication that I am on but as I said it will take several opinions to pinpoint any problem. Please send more details to determine its similarities to what I currently have. But don't worry and instead try to find answers and solutions