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Member
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Join Date: Apr 2009
Location: Tenn
Posts: 554
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Member
Join Date: Apr 2009
Location: Tenn
Posts: 554
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For Maurice -- about vision
Maurice, you posted in another thread:
Nicky, good news: your value of 16 for eye pressure is normal!
I initially had ptosis and DV but that went away after 2 months with the Pred treatment.
Yes, it is highly disappointing to have to go up again with Pred. I went into a relapse when I tried to go from 5mg/d to 4 combined to a vaccine shot last September.
Since then, I learned several things: forget shots when you have MG, never taper more than 10 % Pred at any one step and the last one: if you manage to go down to 5 mg/d, consider staying with that dosage, as it is about the natural cortisone production for my weight (75 kg).
What my neuro says is that MG doesn't affect the eye muscles which control focusing and sharpness (crystalline muscles?) but some people mention " blurry vision" which makes me believe she is wrong...
I had a problem after my first eye surgery, it is called "secondary cataract".
When they change the crystalline for an implant, they keep the envelope which is around the crystalline and there is a probability of 50% that, within 5 years, that envelope get clouded. The treatment is quick, effective and simple: Yag laser shots (around 15 in my case) lasting for a total of less than 2 minutes.
Maurice.
Maurice, I am NOT a doc, but I believe that your neuro is CORRECT. "Blurry vision" in MG is usually very slight double vision. Acute double vision makes you see two distinct images -- slight double vision just makes the images blur or look out of focus.
When I was examined by a resident at a top ten teaching hospital here in the states, my double vision was NOT bad enough to be seen by the naked eye (I didn't look "cross eyed" or "cock eyed"), so the teaching doctor turned off the lights in the examining room and used a pen light and held it at arm's length away from my eyes and told me to look at a picture on the wall. He told the resident to note the point of reflection ON my eyes in reference to my pupils -- in that way the resident was able to see that my eyes were NOT focused in the exact same place. Both the resident AND I learned a simple trick that day.
I hope that this helps.
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~jana
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