Peg,

Twice (to my knowledge) a national PD org has in the past told two of its senior volunteers (one chapter president!; and one former chapter president and current regional representative!) that there were no funds for caretakers - to attend an annual meeting for its leadership. So neither of these grassroots leaders attended their meetings. Did PDF offer to pay for and send caretakers for you and Paula? Paula said she paid her daughter's way.

Many PWP volunteer countless hours in many ways. We shouldn't have to beg to see that our needs are taken care of.

No representative from any org has ever asked if I needed a caretaker or told me from the outset that "if you need a caretaker, their way would be paid, too." All I am saying is that is what we deserve.