Is your son being treated by an epileptologist or a neurologist? They are not the same thing, and he needs the Epileptologist ( more education in epilepsy on top of the neurology residency). Did a doc prescribe the diet he is on now? If he is still having seizures, and it sounds like they are increasing in severity or changing which means more area in the brain is becomeing affected, he will need the Epileptologist at a Comprehensive Epilepsy Center. That is not just a title, so look for the Certification. He is young and has a chance at a long happy life, but the right doc to point him in that direction. No need to wait. His PCP can refer you to a Comprehensive Epilepsy Center with a Pediatric Epileptologist. Sounds like he may be having Complex Partials ( lip smacking, gastric rising, nonpurposeful movement) and disorientation (postictal)afterward. Those staing spells could have been Simple Partials, and it has gotten worse so that consciousness is affected. My epilepsy did the same. Many of us have this type. Please get him to a Compehensive Epilepsy Center. It makes all the difference in one's life. Tattoo