I have had RSD for for 10 years. Up until the last 4 years it was manageable
with medication. However, that was when it spread throughout my entire
body and my sleep problems began.

I have had problems sleeping for the last 4 years. The longest period of
'no sleep' for me was 18 days. Normally I would go 5 or 6 days with no sleep, then just totally pass out for a day then repeat the cycle over and over
again. It got so bad that I would drop off to sleep standing up, and then
fall. My husband began having to watch me all the time to make sure I would
not hurt myself. That is when I decided I had to make my doctors understand
that I had to have something to make me sleep and that I would do or take anything necessary in order to sleep. Everything I read told me that without sleep, nothing works right in your body.

Luckily, my doctor new of a psychiatrist who was doing research on finding
meds, that were prescribed for one thing, but would work for something
else. We tried several things that didn't work. Then he put me on REMERON.
I started on a low dose, which didn't work, but kept increasing it until it did
the charm. I had forgotten what it was like to get in the bed at night and
not wake up until morning. I still have those nights that I wake up from a
deep sleep screaming of pain, but I can live with that.

I know there are meds that work for some and won't work for others. But I
hope that if you haven't tried this, that you will talk to your doctor about it,
to see if it might work for you.

Melissa