Thread: Rsd
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Old 05-11-2010, 06:48 PM
loretta loretta is offline
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Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by Dalia View Post
Eight years ago I fractured my foot in several places, a week later I developed RSD. For six weeks my treatments were spinal blocks and it worked. I live a holistic lifestyle so medication was very invasive to my body and I had hope that the RSD would never come back. Two months ago I developed a small tumor on my other foot on my small toe, because of this I had to have an T-3 MRI, no contrast, the vibration was so intense that i believe it is what has caused my RSD to revisit me once again. Has anyone else ever experienced this? Can it be triggered by any vibration?
Hi Dalia,
I'm sorry you are facing this again? Besides the MRI, did you have a surgical procedure to remove the tumor? I haven't heart of vibration causing relapse, but I believe it certainly could.
I got RSD following breast biopsy and wasn't diagnosed for 4 years, but immediately got frozen shoulder (RSD) and startaed pt..... After a year of therapy, before moving to another state my pt said I could get RSD in other shoulder. He said that happens, but sounded strange to me. I had remission for over a year and out of nowhere, got frozen shoulder in other shoulder. Remember I didn't know I had RSD, was playing tennis, water skiing etc. When it came back, had more therapy and went into remission again. Again over a year of remission. While water skiing, felt a nerve pull in left hand(original site) this time it came back for good. Was misdiagnosed and went to an orthopedic Dr. and he diagnosed me in 1 minute as RSD. It certainly is not uncommon to have spread for various reason.
What are they doing about the small tumor? I know physical therapy, and massage therapy helped me get range of motion and remission back. Both shoulders have full range of motion, and because of delay of treatment, my hand has about 50% of range of motion. Like a claw, but able to cut food, button clothes etc. so grateful for that.
One thing I want to say, is movement is extremely important. It's been 15 years for me since the beginning and have full body. Maybe 3-4 years ago my toes started curling up off the floor, my dr. had me exercise them in swimming pool-water needs to be 86 degrees. 4 months of that and my toes touch the ground and walk good. I work hard to keep mobility and have total use of body except the left hand is partial. Activity, stretching, I still do.
It's important not to freeze up and keep mobile. Stretching is great, swimming is so good for us. squeeze balls, Please get a good pt. I found massage therapy to be wonderful and kept me from being hypersensitive.
To keep from being sensitive, take 5-6 plastic bowls and put cotton balls, rice, coffee grounds, fabric, sand, and run hands and feet thru various textures. A tens Unit is also helpful-my diagnosing Dr. ordered one, ins. paid for. Had nuclear med tests to diagnose.
Hope this helps, It's good you keep informeed. I continue to research. Important to be your own advocate. I'm researching HBOT now and plan on having it. My Dr. just built two clinics with HBOT in them.
A good website to learn from is www.rsdrx.com puzzles list. Dr. of 40 years helping RSD patients. He is retired in Florida, but has someone take over his patients.
RSDSA is the national org. Can put in your zip code and get nearest support group. They can be very helpful to meet local RSD'ers. Take care and let us know how we be there for you and your husband. Your friend, loretta with big hugs
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