I've been out of here for a long time... but just wanted to get back to my fellow LDNers....

I'm a little disappointed in how LDN is going for me.

It seems like it has been a "wonder drug" for so many, and I naively thought that if I started it early in the disease I'd just nip it in the bud. But here I am--2 months into it, and I have a relapse of numbness in the trunk that lasts a few weeks.

Now, 8 months into it, I have increasing sx--my urinary frequency is going up, and I am having the MS hug into my chest. I feel like my lungs are being squeezed and I'm having asthma but albuterol doesn't do a thing. Still waiting to see the neuro, but I'm guessing it's the "hug".

If this is how I am a few months in LDN, I shudder to think what the hell is going to happen to me over years with this disease. LDN was my biggest hope. These days I'm pinning my hope on CCSVI, but who knows if I'll even get a chance to bat at that one.

Any advice? Thanks in advance, all!