hi everyone,

you can read the post "do i have it?" for background but after i couldn't walk all afternoon and evening a week ago last sunday, i woke up the next day and couldn't take a deep breath. it got progressively worse throughout the day like annie mentioned it could and by evening we were racing to the hopital.

i ended up in ICU 2 nights and critical care 5 nights and regular one night. turns out my CTA chest is normal and all the blood is negative. but i am responding to 45 mg of mestinon 6x day and prednisone 30x5 days, 20x 3 days, 10x 3 days.

the ice pack test on my eye was positive, does appear to totally open. i need a walker right now and i am way ramped up on the pred. they are still wary to be totally sure of saying it is absolute even though the doc said the breathing was very scary in the ER and looked consistent with myasthenic crisis and on day 2 he was wondering about IVIG (?)

he still wants me to pursue a single fibre emg outpatient but if i am responding so well, can someone please tell me what is the wisdom in that? i mean other than if they will pull my meds (god help me).

this has been absolute hell. any thoughts? is this a diagnosis? ALL the symptoms, including choking, fatigability x5, eye droop and responsiveness to mg drugs or am i deluding myself here???

not even close to well. . . .

debra