Member
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Join Date: Jun 2009
Location: Texas
Posts: 748
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Member
Join Date: Jun 2009
Location: Texas
Posts: 748
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Wow Debra - -so sorry to hear about your crisis!
Yes it does sound like MG - - and Annie will be the best to advise...but there isn't much point in doing the SFEMG when you're on pred and mestinon I wouldn't think.
The good news is that you have responded to the drugs - even though they haven't gotten you back to where you were. It takes time.
IVIG is an immunoglobulin therapy that has helped many here who have experienced a crisis. (I am lucky enough to only need mestinon so far so I am not speaking from experience.) I'm sure others here will be glad to share their first hand experience.
In the meantime, take it easy and I hope things improve for you as the days go by.
Sue
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