Quote:
Originally Posted by Lisa in Ohio
Wow, I was really having a rough day yesterday so I need to clarify my clarification! When the original break occurred I was in a cast for 1 month, an external fixator for 6 months, and then another cast for 1.5 months. Since that point I have had many other surgeries, neuroectomies, proximal row carpectomy, two grafts from my hips (which now have RSD) into the arm, and two total fusions. Through this time I was constantly in a cast, custom brace or a cock-up brace. It has been so long that it is hard to tell what caused the atrophy, it just is. I would urge anyone to try to be rid of any outer support if at all possible. I do seem to get relief from warm sunshine and humid air. The tornado we had pass through the other night was predicted by me before the weather service got around to it!! I hope all of you are having a "good day", you are all in my prayers, Lisa (sorry for the spelling errors in this, just not sure about some of the medical jargon)
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Lisa,
I hope you and your family made it throught the bad weather ok. I was able to predict our bad weather too, we wound up with floods. I attempted to not use my glove on beautiful days only to have a good breeze come by and put in the bed the next two days. I am so afraid of that so I just don't chance it.
I am starting to question my RSD versus others because after reading alot of the posts it seems people prefer soft fabrics. In my experience, the soft fabric gets cooler and rubs across me and causes my pain to be worse. I do desentization and that has helped me be able to touch my towels and stuff but the soft stuff can still be bothersome at times.
Also, does the burning ever go away completely? Even in remission? Today has been a better day than most yet the burning just wont subside. I know I have alot of homework to do about this disease and that's why I am here so I hope no one minds all the questions.