Quote:
Originally Posted by rezmommy
Kathie,
I am seronegative. I was diagnosed on the basis of a positive SFEMG and clinical observations. Does your dr do the tests on your muscles to see how weak you are and if it is proximal or distal weakness? My dr would spend a lot of time doing this but he would also listen to how I described my weakness after different activities. I took a photo of my eyes at the end of the day so the dr could see how bad the droop was in both eyes. I know that getting the right dr is the key for you so I will be sending good vibes your way. ~ Melanie
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Melanie: The doctor didn't discuss the sfemg with me except to say it didn't show any progression of the disease into my body. He didn't discuss "promiximal or distal weakness". In fact, he doesn't spend much time at all discussing anything. I do wonder how the results can be trusted when I am on Prednisone and Cellcept. I also take Mestinon, but didn't take it the day of the sfemg. I am going to have to take this further by asking for a consult for them to just sit and explain all of this to me. Thanks for writing.
