tyson, be patient with people, they just dont understand.
dont hold it against them, especially your loved ones.
they will come around eventually.

I can woodwork for hours upon hours some days, then hit a wall, and go upstairs and pass out flat on my back for hours. then my buddy will call and complain to me"you have energy to work in that hot garage all day but when I ask you to go out to a game youre too tired or weak, how convenient your illness is"

I laugh at him, and tell him when Im feeling stronger Im going to smack him around, and then we laugh about it.
Its just as frustrating for all your friends and family as it is for you alot of times, although you are one suffering with the disease.
I have similar issues with my nieces, children, sister in law, brotherinlaw, and alot of friends. most now always say, hey, if youre feeling up to it, wed love to have you or come out with us.

just be patient. and forgiving. (and tyson, I know its not easy, not easy at all)