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Old 05-15-2010, 07:14 PM
5280Katie 5280Katie is offline
Junior Member
 
Join Date: Apr 2010
Location: Denver
Posts: 38
15 yr Member
5280Katie 5280Katie is offline
Junior Member
 
Join Date: Apr 2010
Location: Denver
Posts: 38
15 yr Member
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I'll add my comments on Baclofen, if I may. I'm truly terrified of it! Long before I became deathly ill last year, I had taken Flexeril for back spasms for over a decade, because of a deteriorating spine (arthriitis, osteo). It always worked without fail, even after my last facet injection when the surgeon actually had to "pound" the needle into the joint.

During my recent illness, they took me off Flexiril (without any replacement) because it interfered with diagnostics. After I'd come home, the pain Dr reintroduced it because of intense spasms from PT - after he worked through more serious pain concerns. I immediately developed urinary problems (the exact opposite - I couldn't go). After much arguing because of my previous long-term usage, he took me off Flexeril and put me on Baclofen. He explained, in excruciating detail, how I had to ramp-on/ramp-off it. My urinary problem stopped almost immediately (it's fairly common in combination with certain other drugs). As I ramped up to full Baclofen dosage, other far more serious problems developed (no spasm relief at any point, either).

Hallucinations (husband's term); he'd find me carrying on long conversations to thin air; I assured him I never, ever saw anybody or thing. I do remember talking, but he said it was clear, involved, normal conversation. Something I absolutely couldn't do back then and still have some problems with because of brain injuries from the illness.

Vivid, terrifying nightmares based on reality. At 1st, I didn't remember dream content. Onset symptoms included throwing myself from bed to floor. Crawling to the bedroom wall, backing into it, huddling into a ball and crying, trembling. Then, running to the master bath, closing/locking the door, turning all the lights on and crying for help. Then, and still significant in extent now, I'm bedridden and can barely walk the distance. My hands are all-but useless. Finally, paralysis in bed, screaming for help. I said reality-based because at the end, I remembered the nightmares clearly. All included my room, its real furniture and electronics in place (TV, computer, radio, phones, down to remote controls). My empty-nest family; husband, all five cats. I will not describe nightmare contents, but they included simply horrendious things.

Dramatic mood swings and paranoia. I cried violently at toilet paper commercials, laughed until it hurt over news stories about war casualties, accident victims, tornado devestation, even 1 that flattened a town 25 miles from our home. Froze up on medical/PT days. Positive they were killing me with medications, excercises, tests.

Least/last of all, constipation to the point of real threat to my life (from a certain type of hemmorhoid). Husband called the pain Dr, we described problems on speaker phones, he said to stop the Baclofen immediately, even tho we both brought up his ramp-off speech about severity of problems with doing that. Really, really bad move; I won't describe the details but people should NOT do this. Needless to say, Baclofen was added to the only 3 meds on my allergy/alert list, which have been listed for almost 40 years. The Dr was most mystified that Baclofen didn't stop the spasms. After all, its target audience are those with spinal cord injuries. I could tell he thought the other problems were in our heads. A quick internet search shows even the manufacturer lists many of them, and patients have reported all/even worse reactions.

Sorry that this got so long; I feel absolutely compelled/driven to list my complications, possible effects that someone else could have - whenever I just see/hear Baclofen. It was that bad for me, even compared to my post-illness life. I finally ended up on Robaxen for my spasms, although I have to take far more and still have less relief than Flexiril provided.

As a side note, I wished I had a Mom like most of yours. Mine is 94 and in assisted living (I"m her legal POA and also have medical POA - I let her stay in there, while she really belongs in the full nursing home wing). She will NOT take her medications. I've implemented the order that the staff remains in her room until they know all pills are down her, even if they have to pry her mouth open and force them down her throat. She's a master at clenching her teeth (all her own), hiding them under tongue/in her cheek, spitting them across the room, and ever other trick. There are some "different" problems with a lady that age, who has all her marbles, and checks them daily to ensure each is still there and in its correct position

Hope some of this provides info/different thoughts and considerations regarding Baclofen. Thanks for reading (or finding a new sleep aid )
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