Quote:
Originally Posted by tshadow
I have neuro TOS and sometimes the RSD comes out.
I live out in the CA desert (by Palm Springs) and the heat is coming, the weather is going from mild now to summer.
Just tonight the RSD flared up on my arms.
What do you all suggest to do (drugs, topicals) for RSD when it first flares out? Do any of you have any control over your RSD?
thanks.
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Hi Tshadow, Sorry you have BOTH. I'm in Scottsdale, close by you, so understand the heat. I'm in the process of have my Dr. work with a compounding pharmacist regarding a topical cream, ketamine, lidocaine, -don't have all the ingredients or percentages. Will let you know when I do.
I have a terrible time in heat. 2 or 3 cooler showers can cool the body down. A cool wash cloth on the forhead or neck can help. I swim in the shade and that helps. Also drinking cool water helps with the inside. Besides full body RSD, I have internal RSD complete pelvic region. It's pretty tough.
For Pain drugs I'm on vicodin and lorazepam helps with anxiety. I'm sleeping 10 hrs a night with low dose seroquel xr 150 mg. Was on my Drs. 200 person study-before seroquel I was awake all night-a nightmare. Hope this helps, your friend, loretta