Hi.

My 6 yr old daughter had her decompression two weeks ago. Her vomiting was awful. Four days of this whether she ate or not. That is now over. I hope you daughter is over that.

We are still in the hospital. She is having awful headaches. Although, they are not as bad as the first few days, they are bad. My poor baby, I hate to see her like this. I certainly understand what you are experiencing.

Dr don't want to let her go home until she's headache free for 24 hrs. We live 5.5 hrs away, so I have no problem staying here. There are no pediatric neurosurgeons back home. I'll stay in town forever if I have to.

Drs here wanna make sure she is not leaking CSF. I'm so paranoid, I think I see the area around her incision swelling. Just sitting here praying that her headaches resolve.

Sorry I'm not much help. What I can tell you is that you need to continue to push for an answer. Just know that you are not alone. I will keep you in my thoughts.

Is your daughter having headaches?