wow kathy, steroids by IV that is intense. i can only imagine how odd the blood leaving your body must feel and then returning but in a different way. it sounds like it really helped you though, right?

a 5 month taper of steroids sounds like an awful lot but i guess that is a post-surgery thing? i am now on my last dose of 20mg today and go to 10 mg for 3 days and then stop. i really hope that it is sufficient and my breathing is maintained.

i had physical therapy on saturday and some things went well but my vestibular issues went poorly and i became dizzy and nauseated and my heart started to race so we had to stop.

the mestinon is working great for strength but stamina is still very poor. i guess it will take time.

happy to hear you are doing well and thanks for your input, debra