This is great! Just imagine should this become the norm but with the patients making the decisions about the design with the scientists as consultants. Then post the proposals and solicit funds. Recruit participants, conduct, and publish.
Minimize costs by- Do everything online. Work with recent grads that have no hope of funding. Have individual patients all over the world participate with their own MDs recording standardized data.
Ideal for PD. All kinds of possibilities. A perfect example is the tetracycline thread. Thirty bucks worth of antibiotic. Another hundred or so for before and after exams. Throw in a big fudge factor and say $200 per patient. Heck, I'll pledge $200 right now. Raise funds like they used to send kids to camp ("Little Ricky can't run and play like the other kids without your help....
)
Debi- If you guys really want to break out of the box, here is the opportunity. But put a panel of PWP in charge. TOTALLY in charge. Minimal funding, just get folks to return our phone calls. And we have time to launch it at Glasgow, too.