I wanted to let you know that in the beginning (before my MG diagnosis) I had tingling on the left side of my face and a feeling of heaviness only on the left side of my face. I also had minor double vision at the beginning.

My neuro said the tingling feelings "threw him off" but I was positive for antibodies so I did have MG. My motor control was fine at first with just the tingling face and double vision but my MG symptoms progressed from there and I ended up with just about every MG symptom possible by the time I was given Mestinon as a treatment.

Sounds like you have MG. Your doctor should test for antibodies.

I understand your frustration. I hope this helps.